Wednesday, May 21, 2014

The T-21 Blog Hop - May 2014 - Advocacy Rewind

I'm not sure what's happened to May, but here we are at the 21st again.

This month, I'm going to try something a little different.  I know a lot of bloggers that consistently put out some great advocacy pieces, but there seems to always be that ONE article.  There is always that one piece that you were particularly proud of, that maybe nailed your point or defined what your blog was all about. Or maybe you felt it was a little better written than some of the others.

For May, I want to see that one (or two, or three) advocacy post(s) that you are fond of for one reason or another.  We all do some really good work... I think it's time we stood back and took stock of just how good some of it is.

Add your post(s) to the linky below by clicking the link and following the instructions.  If you need further instruction for adding a reciprocal link to your blog post, follow this link.

Set the wayback machine and let's go!


Thursday, May 8, 2014

In the News - April 2014

A collection of news articles, blogs, stories and information about Down syndrome, disability and special needs, from Down Wit Dat's Facebook page.  These are from April 2014.


Legend:
AUDIOindicates an audio clip
APPEAL indicates an online petition or plea
BLOG indicates a blog post
CASE indicates a lawsuit or proceedings
EVENT indicates a scheduled event
IMAGE indicates a graphic, image or comic
LAWS indicates a new piece of legislation
LINKS indicates links or resource materials
PHOTOS indicates photos
POLL indicates an online survey
POST indicates an advocacy statement made through social media
PRESS indicates a press release
QUOTE indicates a meaningful quote
STUDY indicates a study or discovery
THREAD indicates an online discussion thread
VIDEO indicates a video or movie clip
VLOG **NEW** indicates a video blog post


BLOGWhat Good Does Autism Awareness Do?  It Doesn't
IMAGE"Text Reads: Autism "Awareness" Month: The month that Autism $peaks..."
BLOG
Awareness Sucks
POST"Top Ten Things I want you to be Aware of on Autism Awareness Day:..."
IMAGE"#boycottautismspeaks I am grateful for parents and allies who actually "get it" and..."
IMAGE"My Plan B is to stick to Plan A and fight for Social Justice...  There is no Plan B!"


APPEALSesame Street:  Reconsider Partnership with Autism Speaks
BLOGSnow
BLOGPrelude
POSTFrom one year ago: The Surgical Suite
BLOGCircle of the Sun

Autism Acceptance Month 2014: Cynthia Kim
IMAGE "The nondisabled world tells disabled people generally that our lot is unavoidably tragic, ..."
BLOG
IMAGEDid you know?  Stimming:  Usually NOT harmful - the repetitive movement of body and...
Special-Ed Student Who Recorded Bullies Accused of Felony Wiretapping
POST“Functioning labels are insulting to me. And people like me do not like to have others label..."
BLOG
April is Autism Speaks Awareness Month

The death no one cares about
VIDEO
BLOG
Happy Easter!

BLOG
Panis Angelicus

BLOG
I Am More Than An Empty Wheelchair: Speaking Up Against Ableism
BLOG
Spring Clean Up
POST"Watching the news. A story comes on about "classroom evacuations" that are... "
BLOG
Expressions of PosAutivity #AutismPositivity2014
BLOG
Awareness v. Acceptance: Does It Matter? Article for PACLA Magazine @Aut_Love_Accept
BLOG
Everybody and their Frog: Parenting Autistic Children with Love and Acceptance
APPEAL

Autism advocates should promote acceptance, not fear
POST@SOOntario given chq from @PeelPoliceMedia & @CarPride, 11 Div ran a successful Charity Car Wash raising $14,000

My Name is David Heller, Class of 2018, The College of New Jersey, and I Want to Tell You, “Nothing Is Impossible”

BLOG
Having THE Conversation & Parenting
BLOGYes, That Too: Expressing PosAutivity MY way #AutismFlashblog2014
BLOG
Shaping Clay's Expressions of PosAutivity: #AutismPositivity2014
BLOG
Autism Graphics
BLOG
S.R. Salas | Autism Blog: Expressions of PosAutivity #AutismPositivity2014
BLOGBehavior is Communication: Are You Listening?


April also saw another edition of the T-21 Blog Hop...


Thanks to all who participated.

The T-21 Blog Hop will take place every month on the 21st, for three days and will continue to feature advocacy posts from across the disability community.


...And that's the news.  Keep the stories and information coming!

Monday, April 21, 2014

Spring Clean Up

I'm a gardener.

Every year, the promise of spring gets me through the winter.  There are some awfully long snowy days up here in the Great White North... which is probably why we are called that.  But, every year spring arrives, the snow first melts to reveal snirt (piles of snow+dirt) and then just dirt, which is then washed and blown away by spring rain and wind.  Little green things start poking up through the ground and if I haven't already, I start thinking of planting vegetables and what flowers I would like to try this year.

This year has been different.

The winter of 2013/2014 has been plagued by more-serious-than-normal weather.  Floods in the summer gave way to ice before Christmas, more ice after Christmas and snowstorm after snowstorm after snowstorm.  Some people were without power for the entire holiday season, during which we had ridiculously hostile low temperatures with face-ripping wind chills.  In a literal sense, it has been a hard winter.  In a figurative sense there has been higher than number heart attacks, falls and mental health issues, in no small part due to the weather and it's implications. This year the snow melted to snicks (piles of dirty snow filled with sticks) and then dissipated to twigs and dirt, the remnants of which are still being discovered and cleaned up city wide. 

I have not been immune either.

As I stated earlier in my What's Up? post, this winter has been hard on me too.  I've had to re-evaluate everything I do, from how I brush my teeth to how I get ready for work to how I go to bed to how I organize myself and the family.  I've had to actively change my thinking, which is a story for another day, but understand that it has been no picnic.  Those few that are closest to me can testify to that.

That is a story for another day, as frankly it is still going on.  As a mental health professional, it is my responsibility to end stigma.  As a blogger I've been nothing but honest... but I'm not ready to tell that story fully yet.  I will, and in my own way:  loudly, proudly and without a twinge of regret.  Again, that time is not today.

Instead, I'll talk about gardening...

Today the temperature went up to over 20 degrees Celsius, which in Canadiana means SHORTS!  Although I did not feel like doing anything other than crawling back into bed, I made myself go out to the front yard and start cleaning up the garden.  Its not a grand thing, but a friend and I designed it at work one night and Sean and I then built it two summers ago.  The gardens themselves were covered in dried leaves and maple keys that had blown up the street and been trapped, along with occasional bits of paper and garbage.  The lawn was covered in assorted twigs and branches and pine cones that had not been picked up yet.  Stones that had lined the side of the driveway had been heaved up by countless shovels onto the lawn and the gardens and the remnants of last falls foliage--that in my illness I had not gotten to--either lay flattened on the soil, or dryly poking up at odd angles.  It was a mess.  And so was I, with my hair coiled up in a greasy bun on the top of my head.  Wisps were sticking out at random and I managed to nail the more annoying ones down with barrettes.  Finish the look with my ugly-ass gardening shoes, standard black T-shirt and capris and shades and you'll understand what shambled outside.  I had no desire to start this project.  I had no desire to do anything.  I got the paper yard bags out of the back of the truck, put on the bright blue gardening gloves that were on the shelf in the garage (after first shaking them for spiders), put my headphones in and started on the leaves and trash that was under the porch.

The porch cleanup yielded an orange matchbox car, and cleaning up around Dog (our one gargoyle) helped me find all the painted pots that Quinn and I did a couple of years ago.  We lost one, but I set the rest carefully up on the steps.  As I started work on the garden proper, I was not sure what I was going to find.  With all the salt and sand and de-icer that ended up on the lawn and garden, I was not convinced I would find anything alive other than the occasional maple sprout under the debris.  As I cleaned and aerated and smoothed the soil, I started to find shoots here and there.  This will be a trillium in a few weeks.  This one here will be a hosta. This stick has shoots on it and will be a tree peony;  maybe this year it will even bloom.  These are some of the giant day-lilies that surround Pazuzu (our other gargoyle).  Yes, there was more things that I did not find than I did;  it's possible that they have not started yet or the winter claimed them.  The jury is still out on the burning bush I planted last year.  But, the lavender is starting to green up and even the dead leaves offered heady fragrance as I cleaned out every last bit of detritus.

As I broke off last years lily stalks and yanked clumps of rouge grass out of the gravel path, the fresh air and sunshine worked it's usual magic.  Even the marble shards cutting into my knees hurt less as the breeze ruffled loose tendrils of hair and some of my favourite songs filled my ears.  It was my hands in the earth however, that renewed a sense of connection.  I pulled my gloves off and smoothed the soil by hand around some hosta shoots.  It felt good to be alive and to be connected to the earth, a feeling that has eluded me for so many months.

I continued my work with a half smile on my face, picking stones out of the soil, putting dead leaves and twigs in my bag and was about to pick up another rock when I stopped to look at it.
[Image description:  heat shaped stone half buried in soil, with maple sprout above.]
Sometimes Nature smiles back.

I guess I told you that to tell you this:  it has been a long, difficult journey to get to this point.  I have not been up to my usual levels of presence and advocacy as I have been advocating for another cause:

Me.

But, much like the sprouts I uncovered today, there is hope.  There is promise, even if some days I have to work hard and dig for it.  Some days come easy, and some leave me battered, exhausted, covered in bruises, sweat and dirt.

It is hard work.  Hard.

When this is all over, I hope to end it the same way I ended my time outdoors:  with a cold Coke, in my Muskoka chair on the porch, the sounds of my kids playing filtering through the open window.  Until then, each task is undertaken individually.  Each day comes in it's own time.  Growth happens where it can, and sometimes I can clear the way for it to happen.  Sometimes it comes all on it's own and yields unexpected surprises.

It's time to clean up after this long winter.  I think today was a pretty good start.

Welcome to the T-21 Blog Hop - April 2014

When I resurrected the T-21 Blog Hop last October, I did so with the idea that regardless of whatever month or theme I had chosen for a particular 'hop, it would always be open for pure advocacy posts.  That has not, nor will it ever, change.

This month, there is a lot going on in the various disability communities.  Instead of picking a topic or jumping on a popular organization's bandwagon, I'm going to let the posts and their authors speak for themselves. 

If I had to pick a topic to go with April, I'd say "Acceptance" or "Advocacy".  Both of those begin with A, right?  However, truth be told, those should be the themes for every month, as they are the drum beat that spurs folks like the ones you are about to read, on.

Shower us with Acceptance and Advocacy posts.  It is April after all...


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